I started this blog last year with the idea to show what it is like to live with Fibromyalgia every day, but I also wanted to keep a positive attitude in it. I realize that I have slipped off the track of positiveness, and entered into the dark realm of complaining. So I am going to start again.
It's very easy to slip and become a chronic complainer because you live in constant pain and discomfort. I start out simply trying to explain why I am acting a certain way, and end up complaining. If someone asks me how I am, I feel I should be truthful and say how I am.
But that is not the way I want to be. Truthful, yes, but not focusing on the bad stuff. It is very hard when pain speaks the loudest, but I have to remind myself that everyone lives with some challenge. It might not be physical, but it might be emotional, or relationship related, or financial concerns. It's not what we have, but how we handle what we have.
I have made a New Year's Resolution this year by the way. I have resolved to find specific time for myself. I have not actually done it yet, but I want to schedule some time on a regular basis, whether it be daily, weekly, monthly, but it will be a routine. I'm not sure what I will do during this time, but I know that after this last holiday season, I was desperately seeking time and space for me. So that's what I'm working on. It doesn't have to start January 1rst, but at least it is in the process.
I'm not sure how to handle Fibromyalgia without complaining, but I'd like to learn to be tougher. I don't have to be perfect, but I'd like to be better than I am. If you have any good ideas send them to me because it's always here. I don't know that it can or should be ignored, but is there a way to not burden others with it, and at the same time take care of myself?
This is the stuff that I'm thinking tonight that I wanted to share with you. I see a doctor appointment in my near future with my latest stomach situation, and if it send me on a new course I will let you know. I want to educate you, help you to know that you are not alone, but at the same time, not complain. Is it possible? We will see.
“Constant effort and frequent mistakes are the stepping stones of genius.” ― Elbert Hubbard
Saturday, January 14, 2012
Monday, January 2, 2012
Chronically Tired (Exhausted)
By Theresa Blume
Oh, how I wish I were a bear! I could hibernate all winter and no one would think it was strange. First of course I would eat double my weight in food in the fall, and then find a nice cozy cave and warm blankets and just drift off into wonderful sleep.
Back to reality. I'm not a bear! I only have Chronic Fatigue with Fibromyalgia so I just WANT to sleep the whole winter away. The one big problem is I don't sleep at night! So I've come up with a good solution. Sleep when I feel like it.
So far it looks like this:
The day begins (not really) at 5 in the morning when I stiffly get off the bed, grab a pain pill and allergy pill, get the heating pad and put it on my back. Fall asleep till 7 or 8.
Get off the couch, go back to bed. Sleep until 11.
Force FORCE myself to get up and get a shower. Get dressed. Feed the cats. Fall asleep on the couch sitting up till 1.
The afternoon is BEARABLE until about 4:00. Absolutely can't stay awake so I crawl back into bed for a couple hours.
Eat something for supper. Stay awake until 9:00. Fall asleep unable to keep my eyes open until-what time is it now? 11:00pm. Awake, don't feel too bad.
Now the question, should I take this wonderful feeling that I have for the first time today and take a sleeping pill or muscle relaxer to force myself to go to bed at what society calls a decent hour? Or should I try to accomplish everything I couldn't do all day so I can catch up. If I force myself to sleep, I will still be the same way tomorrow. If I don't, I will still be the same way tomorrow.
I would like to know what you would do!
Oh, how I wish I were a bear! I could hibernate all winter and no one would think it was strange. First of course I would eat double my weight in food in the fall, and then find a nice cozy cave and warm blankets and just drift off into wonderful sleep.
Back to reality. I'm not a bear! I only have Chronic Fatigue with Fibromyalgia so I just WANT to sleep the whole winter away. The one big problem is I don't sleep at night! So I've come up with a good solution. Sleep when I feel like it.
So far it looks like this:
The day begins (not really) at 5 in the morning when I stiffly get off the bed, grab a pain pill and allergy pill, get the heating pad and put it on my back. Fall asleep till 7 or 8.
Get off the couch, go back to bed. Sleep until 11.
Force FORCE myself to get up and get a shower. Get dressed. Feed the cats. Fall asleep on the couch sitting up till 1.
The afternoon is BEARABLE until about 4:00. Absolutely can't stay awake so I crawl back into bed for a couple hours.
Eat something for supper. Stay awake until 9:00. Fall asleep unable to keep my eyes open until-what time is it now? 11:00pm. Awake, don't feel too bad.
Now the question, should I take this wonderful feeling that I have for the first time today and take a sleeping pill or muscle relaxer to force myself to go to bed at what society calls a decent hour? Or should I try to accomplish everything I couldn't do all day so I can catch up. If I force myself to sleep, I will still be the same way tomorrow. If I don't, I will still be the same way tomorrow.
I would like to know what you would do!
"People, even more than things, have to be restored, renewed, revived, reclaimed, and redeemed; never throw out anyone." — Audrey Hepburn, actress and philanthropist
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